A mother and daughter duo have braved the blisters to walk an incredible 90 miles to raise vital funds for Rainbows Children’s Hospice in Leicester.
Jac Burbank and her daughter Stacey French took on the challenge in memory of their nephew and cousin Toby Danielle who was born with a rare genetic disorder called GM1 Gangliosidosis.
Jac and Stacey, who both work at Hinckley-based printing firm Checkprint, were joined by four of their friends as they walked from Leicester Clock Tower to Skegness in just three days. However, the sore feet and aching legs were a small price to play as the group have raised an impressive £2,000 so far.
Rainbow Children’s Hospice is the East Midlands’ only hospice for children and young people. Each penny raised will help the hospice continue to provide vital support for children and their families affected by various illnesses.
Gangliosidosis, with a mutation of the GM1 gene, is an inherited disorder which affects the brain and spinal cord and causes a decreased life expectancy. It can affect 1 in every 36,000 babies.
Commenting on the walk, Jac said: “We are very grateful to everyone who has donated money to such a worthwhile cause. Rainbow Children’s Hospice has provided fantastic support to our family during this very difficult time and we are pleased to have been able to help them continue to help other local families in similar situations to ours. Walking such a long distance for three days straight was exhausting, but we just wanted to keep going for Toby.”